ISMRD
The 2012 International Conference for Glycoprotein Storage Diseases and the extension of the Natural History Study will take place in Charleston South Carolina July 27th - July 30th 2012.
Lysosomal Disease Organizations
These global organizations provide further information that may compliment the services that ISMRD provides.
Umbrella Groups
- ADAC: Alteraciones de Crecimiento/Desarrollo y Enfermedades Lisosomales
- Associação Portuguesa das Doenças do Lisosoma
- GOLD: Global Organization for Lysosomal Diseases
- Hide and Seek Foundation
- Lysosomal Diseases Australia
- Lysosomal Diseases New Zealand
- National Tay-Sachs & Allied Diseases Association
- Vaincre les Maladies Lysosomales
- WORLD: World Organization for Research on Lysosomal Diseases
MPS Organizations
- Australian MPS Society
- Associazione Italiana Mucopolisaccaridosi
- Austrian MPS Society
- Canadian MPS Society
- Gesellschaft für Mukopolysaccharidosen e.V.
- Hong Kong MPS & Rare Genetic Diseases Mutual Aid Group
- Japanese Society for MPS
- MPS Brazil
- MPS Spain
- National MPS Society (US)
- UK Society for Mucopolysaccharide Diseases