ISMRD
The 2012 International Conference for Glycoprotein Storage Diseases and the extension of the Natural History Study will take place in Charleston South Carolina July 27th - July 30th 2012.
Research
Investigation of new therapeutic techniques for Lysosomal Diseases and their underlying causes has accelerated in this new milennium. The following sites may be explored for monitoring this activity's impact on Glycoprotein Storage Diseases.
Biopharmaceutical Companies
Clinical Trials
- ClinicalTrials.gov: the National Institutes of Health's index of clinical trials proposed, under way and terminated.
- IFPMA: International Federation of Pharmaceuticals Manufacturers & Associations Clinical Trials Portal
Organizations & Agencies
- Coriell Institute
- National Ataxia Foundation
- National Center for Complimentary & Alternative Medicine
- National Institute of Child Health & Development
- National Institute of Dental & Craniofacial Research
- National Institute of Neurological Diseases & Stroke
- Office of Rare Diseases
- Society for the Study of Inborn Errors of Metabolism
- National Office for Rare Disorders
Other
- The Glycoproteinoses: An International Workshop on Advances in Pathogenesis and Therapy (NINDS-funded research conference in April 2004)