News & Events

  • June 2018 – ISMRD submits to the UK Medicine Evaluation on the treatment of alpha mannosidosis. Read our submission.
  • Feb 2018 – Book preface features ISMRD Board Member
  • Feb 2018 – Newsletter
  • Jan 2018 – Year 1 progress report on gene therapy research project
  • Jan 2018 – ERT for Alpha-Mannosidosis gets positive EMA recommendation
  • Dec 2017 – Newsletter
  • Nov 2017 – 5th ISMRD conference in Rome
  • May 2017 – ERT for Alpha-Mannosidosis awaits EMA review decision
  • March 2017 – Newsletter
  • March 2017 – Research grant approved for osteoporosis in ML II
  • Jan 2017 – Research grant for gene therapy in Mucolipidosis approved
  • Dec 2016 – Newsletter
  • Dec 2016 – Next ISMRD conference announced for Rome 2017
  • Oct 2016 – ISMRD calls for research proposals
  • July 2016 – Newsletter
  • June 2016 – Research fundraiser hits $150,000 !!!
  • April 2016 – Newsletter
  • March 2016 – ISMRD launches major research fundraiser