Archived Newsletters

Pathways Newsletter March 2012 (PDF) In this Edition: Outgoing and Incoming Presidents editorials, Conference draft program, New families, Life with a disability by Sylvia Webb, Gandhi Foundation grants $20,00 to Greenwood Genetic Centre for ML II research, Australian ISMRD family raises awareness for Rare Disease Day, World Report on Disability.

Pathways Newsletter August 2011 (PDF) April 2011 Edition: From the President's Desk; In Memory of Jenny Smith - Alpha Mannosidosis, 2012 International Scientific/Family conference, ISMRD wins Patient Advocate Leaders Award, Family stories, Positive clinical effects for Phase 2 clinical trial for Alpha-Mannosidosis.

Pathways Newsletter 2011 (PDF) April 2011 Edition: From the President's Desk; Appointments to Professional Advisory Board and Board of Directors; From the Fundraising Team; Announcement of Family meeting and Natural History Study; A Family report from the WORLD symposium; What's in the News; Family stories

Pathways Newsletter 2010 (PDF) April 2010 Edition: From the President’s Desk; Treasurers report and ISMRD’s projects over the last 12 months; Ethan’s slide, Glide and Ride fundraiser; Dr Sara Cathey and Jenny Noble Interview on Shine TV New Zealand; Global Genes project; NIH Announces New Program to Develop Therapeutics for Rare and Neglected Diseases; Lonnie’s Successful Job

Pathways Newsletter 2009 No. 2 (PDF) September 2009 Edition: Message from the President; ISMRD Annual report adopted by Board of Directors for the 2008 year; ISMRD and GGC – A positive partnership for research; An Evening of Penguin Dreams – Charity/Auction/Dinner May 29 2009; NIH Announces New Program to Develop Therapeutics for Rare and Neglected Diseases; A Snapshot of David Mackay; In Memory of Kelly Crompton

Pathways Newsletter Vol. 8, No. 1 (PDF)   June 2006 Edition: Hue-Man Project funded by European Union; Natural History collection for ML to begin. 

Pathways Newsletter Vol. 7, No. 1 (PDF)  December 2005 Edition: Crossing Oceans for a Cure Family Workshop and Walk-Run Fundraiser in Michigan.  

Pathways Newsletter Vol. 6, No. 1 (PDF)  Summer 2004 Edition: 1st International Conference on Glycoprotein & Related Storage Diseases.

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