ISMRDUpcoming Events
The following events may be of interest to anyone affected by or interested in Glycoprotein Storage Diseases.
2012 International Conference for Glycoprotein Storage Diseases
ISMRD is proud to announce our 2012 International Conference for Glycoprotein Storage Diseases.
The workshop will take place in Charleston, South Carolina July 26th – July 30th 2012.
Visit the 2012 International Conference website for more details.
International Rare Disease day
February 29, 2012 marks the fifth international Rare Disease Day coordinated by EURORDIS and organized with rare disease national alliances in 25 European countries. On this day hundreds of patient organisations from more than 40 countries worldwide are organizing awareness-raising activities converging around the slogan “Alone we are rare but together we are strong”.
Activities will take place across Europe, all the way to Russia, continuing to China and Japan, in the US and Canada, and as far as Australia and New Zealand!
This is an exciting opportunity for ISMRD to get involved and raise awareness and funds for our very rare diseases. What will you do to raise awareness? Check out our list of information and ways that you can get involved.