International Rare Disease Day is just around the corner. This year will mark the ninth year that the international rare disease community celebrates Rare Disease Day.
Theme: Patient Voice
Slogan: Join us in making the voice of rare diseases heard.
On February 29, 2016, people living with or affected by a rare disease, patient organizations, politicians, caregivers, medical professionals, researchers and industry will come together in solidarity to raise awareness of rare diseases.
The Rare Disease Day 2016 theme ‘Patient Voice’ recognizes the crucial role that patients play in voicing their needs and in instigating change that improves their lives and the lives of their families and carers.
The Rare Disease Day 2016 slogan ‘Join us in making the voice of rare diseases heard’ appeals to a wider audience, those that are not living with or directly affected by a rare disease, to join the rare disease community in making known the impact of rare diseases. People living with a rare disease and their families are often isolated. The wider community can help to bring them out of this isolation.
We have created our new flyers for this year with emphasis on our virtual morning tea. Its as simple as asking people to donate the cost of their morning tea to ISMRD.