Attending conference such as the 3rd International Conference for Glycoprotein Storage Diseases can be life changing. Below are some person reflections by families who attended the meeting.
- Three days before the conference I felt an emotional Tsunami engulfing me
By Trish Adkins, Mucolipidosis II Parent- USA
- Thank you ISMRD
By Adian Trestianu Mucolipidosis II Parent - Italy
- Isolation Broken
By Birthe and Truls Roll Mucolipidosis III Parents - Norway
- First conference of this kind for me
By Julia Taravella Aspartylglucosaminuria Parent USA
- Loneliness broken by ISMRD family
By Smith Lambert, Sialidosis affected adult.