ISMRD publishes a electronic newsletter called Pathways that has interesting articles and colorful illustrations about ISMRD’s activities, as well as information about Glycoprotein Storage Diseases.
If you would like to download a copy in Adobe Acobat format, please feel free to sample it right on your home computer.
If you have changed your e-mail address or you would like to be added to the e-mail list please contact us at firstname.lastname@example.org.
April 2014 (PDF)
In this issue: In this edition: International rare disease day, Online forum for Rare Disease Caregivers, Dutch National plan for rare diseases,The FDA and Drug development for the fatally ill, Understanding the role of regulatory affairs in orphan drug availability, conferences, New members donors.
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