Alexander's Hope: a family's fight against sialidosis

a family's fight against sialidosis   

background | faq | news | publicity | photos | contact alex's family

Sialidosis is one of the Oligosaccharide family of Lysosomal Storage Diseases. The International Society for Mannosidosis & Related Diseases is proud to present the story of Alexander Skojec and his family's fight, through the intervention of his father, to raise awareness for this very rare disorder.

Read Dr. Skojec's recount of his family's first encounter with another Sialidosis family.  

Last updated: December 15, 2001

Disclaimer | Privacy Policy | Site Map | Contact Us | Accessibility

© 2009 ISMRD, a 501 (c)(3) not-for-profit organization, FEIN 52-2164838. All rights reserved