The 2012 International Conference for Glycoprotein Storage Diseases and the extension of the Natural History Study will take place in Charleston South Carolina July 27th - July 30th 2012.

An image of Jenny Smith who shares her experience of having a bone marrow transplant. Welcome to Jenny's Journal

...reclaiming a life through BMT

Thank you for all your kind letters and support. It helps to remind all of us how grateful we are and how precious life is!

Thank you, especially, to my donor, Todd, without whom none of this would be possible.

email me!

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