The 2012 International Conference for Glycoprotein Storage Diseases and the extension of the Natural History Study will take place in Charleston South Carolina July 27th - July 30th 2012.

Jenny's mom, Dianne, has kept family and friends apprised of Jenny's progress with her Bone Marrow Transplant from the initial decision to move forward to the tense days and weeks following the procedure.  These "updates" have here-to-now been shared with members of a private Mailing List.   The Smiths have decided to share Jenny's progress with the world, in hopes of helping others who may face similar difficult decisions.

To follow Jenny's story from finding a donor, to transplantation and to recovery select a journal entry below.  Each entry is listed by date, so viewing from the beginning will enable you to follow chronologically.  

A graphic to introduce the 1999 journal entries.
A graphic to represent the year 2000 journal entries.
A graphic to represent the year 2001 journal entries.
Contents:
 Contents:
 Contents:

2002

  • january 12: Our Hearts are filled with HOPE!
  • january 30: new post-BMT photo gallery!
  • april 17: Jenny Continues to Improve!
  • july 30: Great News for the Lysosomal Disease World!

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