The 2012 International Conference for Glycoprotein Storage Diseases and the extension of the Natural History Study will take place in Charleston South Carolina July 27th - July 30th 2012.

A framed family photograph of Jenny. The Smith family, in their desire to help humanize alpha mannosidosis (and out of understandable pride for their daughter), have consented to this pictorial homage to Jenny. We hope you enjoy it and our thanks to Jenny for her courage and her beauty!

This photographic essay is available in two "albums:" one of her and her family from toddler to pre-bmt and another of her saga into and beyond her procedure. Click an album to begin the journey.

See Jenny's latest photos!

(updated August 18, 2002)

   

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