The 2012 International Conference for Glycoprotein Storage Diseases and the extension of the Natural History Study will take place in Charleston South Carolina July 27th - July 30th 2012.

Jenny's Donor: Todd Bobeda

Jenny's Donor

Jenny and all of us want to thank Todd for his humanity in allowing Jenny a chance to overcome the progressive effects of Alpha Mannosidosis. To read his recount of the harvest of his marrow, see Jenny's mom's account in her log entry # 23: "CMV Virus in Both Retinas!"

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