This is the ongoing journal of Robert Stark's fight against alpha-mannosidosis via Bone Marrow Transplant. Families and caregivers of children with mannosidosis and other Lysosomal Diseases face complex decisions about the future. It is the hope of Robert's parents, Kathleen and Mark, that the pages within will prove helpful when such decisions must be made.
Robert underwent his first transplant in July 2001. In April 2002, after the first transplant failed, the family decided that Robert should undergo a second procedure. Select from the menu below to follow the story, as told by Robert's parents, Kathleen and Mark.
Kathleen's diary last updated: September 4, 2004