The 2012 International Conference for Glycoprotein Storage Diseases and the extension of the Natural History Study will take place in Charleston South Carolina July 27th - July 30th 2012.

Presented by the International Society for Mannosidosis & Related Diseases.

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Kathleen's Diary: July 15, 2001

Robert BMT-3

Robert is now doing well. His fever is between 103 and 104(40.4), his 02 has been dropping and they are blowing oxygen on him. His heart rate is over 180 and he is breathing very fast. His respiration rate is over 70. They brought down a portable x-ray machine to take a chest x-ray. Fortunately, the x-ray had a negative result. They are also running cultures to hopefully rule out any viral infection. Both Mark and I talked to his father (the doctor) and he said don't panic yet. He said we should have about 30 days like this before we are finished. It is about 10:00 p.m. and we are waiting for the test results.  

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