The 2012 International Conference for Glycoprotein Storage Diseases and the extension of the Natural History Study will take place in Charleston South Carolina July 27th - July 30th 2012.

Kathleen's Personal Diary

Robert's mother, Kathleen, has maintained this online diary of her son's BMT since July 2001. The news that the first transplant lost engraftment was devastating, yet Robert's family maintained their composure and scheduled a second procedure. Herein is chronicled the record of this second transplant in less than a year.

An image logo for Kathleen's diary about the second transplant. 2002

March: 24 | 25 | 27 | 28 | 29 | 31

April: 2 | 3 | 4 | 6 | 7 | 9 |10 |12 |13 |14 |15 |16 |17 | 19 | 20 | 21 | 22 | 23 | 24 | 25 | 26 | 27 | 29

May: 1 1-2 | 2 | 4 | 6 | 7 | 9 | 10 | 12 | 14 | 15 | 16 | 18 | 20 | 20-2 21 | 22 | 23 | 25| 26 | 27 | 28 | 29 | 30 | 31

June:1 | 2 | 4 | 7 | 8 | 9 | 11 | 12 | 13 | 14 | 15 | 16 | 17 | 18 | 20 | 23 | 24

July: 8 | 22

August: 10 | 12

September: 11 | 14 | 16 | 30

October: 19

November: 10

December: 4

2003

December: 4

2004

June

A thumbnail image of Robert smiling from his hospital bed.

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