The 2012 International Conference for Glycoprotein Storage Diseases and the extension of the Natural History Study will take place in Charleston South Carolina July 27th - July 30th 2012.

Robert's Road to Recovery: the second transplant

Graphs & Charts

As Robert undergoes An image of Robert to introduce the topic of his medical charts and history. recovery from his second bone marrow transplant, his parents are keeping records of his vital indicators.  It is hoped that this information proves useful not only for his family and doctors, but for children undergoing other transplants, as well.

Map of vital signs in spreadsheet format: Summary | Detail

Graph of vital indicators: Monthly averages

Weekly home medication schedule

Last updated Sunday, June 30, 2002

Disclaimer | Privacy Policy | Site Map | Contact Us | Accessibility

© 2009 ISMRD, a 501 (c)(3) not-for-profit organization, FEIN 52-2164838. All rights reserved