ISMRD
The 2012 International Conference for Glycoprotein Storage Diseases and the extension of the Natural History Study will take place in Charleston South Carolina July 27th - July 30th 2012.
Medical Notes & Observations
In the interest of providing an historical record for other families, Robert's mom, Kathleen, is keeping a log of medical milestones before, during and after her son's BMT. Select from the menu below to access that day's log.
Robert's surgical history (updated 11/24/01)
July 9: meds administered & action plan
July 10-16: meds administered
August 24: white blood cell counts in hospital: chart; graph
September 9: chart of medicines to be administered at home
October 20: chart of white blood cell counts vs other thresholds