ISMRD
The 2012 International Conference for Glycoprotein Storage Diseases and the extension of the Natural History Study will take place in Charleston South Carolina July 27th - July 30th 2012.
Medical Notes: July 9, 2001
July 9, 2001
Medical Update BMT-10
Robert received the following today: Heparin HD Acyclovir Dilanten(anti-seizure medicine to combat the effect of Busulfan) Septra Fluoride IVIG
Robert cannot have any fever reducing medication including Tylenol while he is on Busulfan. Robert is AB+ and his donor is 0+. This maybe important to know for potentially needed blood transfusions later.
| Robert’s Bone Marrow Type: | A 0302 | 1101 | B3501 | 5501 | DRB1 | 1101 | 1401 |
| Robert’s Donor’s Type: | A 0301 | 1101 | B3501 | 5501 | DRB1 | 1101 | 1401 |
plan of action:
| Days to BMT and Medications to Administer: | ||||||||||
| Meds: | -9 | -8 | -7 | -6 | -5 | -4 | -3 | -2 | -1 | 0 |
| Busulfan | X | X | X | X | ||||||
| Fludarabine | X | X | X | X | ||||||
| rATG | X | X | X | X | ||||||
| BMT | X | |||||||||
lessons learned:
- The nurses in BMT are some of the best in the world. They explain everything, no matter how minute the detail.
- Cut all nails, try and clear up any cuts that have occurred before entering BMT and get all splinters out of hands or feet. Any open cut or chance to scratch is an opening waiting for infection.
- Don’t do any tests before you have to. Since most tests must occur within 30 days of the BMT if you do them right away and the donor falls through you will likely have to repeat them.