ISMRD
The 2012 International Conference for Glycoprotein Storage Diseases and the extension of the Natural History Study will take place in Charleston South Carolina July 27th - July 30th 2012.
A List of Robert's Surgeries pre-BMT
Listed below are all the surgeries Robert has been through since birth:
- March 14, 1997: Tubes
- April 5, 1997: Fundoplication, Pyloroplasty and Gastroscopy
- September 25, 1997: Cranialectamy
- December 10, 1997: Tonsillectomy and adenoidectomy
- February 23, 1998: Tubes
- March 24, 1998: First Back Surgery
- April 14, 1998: Second Back Surgery
- April 19, 1998: Fiberoptic Bronchoscopy, Central Venous Cather, Body Cast Change
- September 21, 1998: pH Test
- November 9, 1998: Laryngoscopy, Bronchoscopy, Bilateral Tymanotony and Tubes
- June 3, 1999: Bilateral Strabismus Correction and Trigger Finger
- August 25, 2000: CT of Spine and MRI of Spine
- March 7, 2001: Temporary tubes, left baby finger-trigger, left thumb and CT of lungs
- June 5, 2001: Two teeth filled and back teeth capped to protect them from grinding.
- July 3, 2001: Line placement for BMT
- July 19, 2001: Repositioned line
- August 16, 2001: MRI of head and back
- August 24, 2001: Bone Marrow biopsy
- November 6, 2001: Bone Marrow biopsy
- November 15, 2001: New line placement
Read more: Back to the Beginning | Suspicions & diagnosis | An action plan & donor search | ongoing medical notes & procedures log