Alexander's Hope

Alexander's Hope: a family's fight against sialidosis

a family's fight against sialidosis   

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Sialidosis is one of the Oligosaccharide family of Lysosomal Storage Diseases. The International Society for Mannosidosis & Related Diseases is proud to present the story of Alexander Skojec and his family's fight, through the intervention of his father, to raise awareness for this very rare disorder.

Read Dr. Skojec's recount of his family's first encounter with another Sialidosis family.  

Last updated: December 15, 2001