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SUMMARY:Crossing Oceans for a Cure 2005
DESCRIPTION:Crossing Oceans for A Cure Family Workshop & Fundraiser was one of the largest events undertaken by ISMRD. Families that had never been exposed to others whose children had the same very rare diagnosis were afforded the opportunity to meet. These same families were tutored about Glycoprotein Storage Diseases\, Mucolipidosis and Mannosidosis by eminent professionals from across the globe. On Saturday everyone witnessed and participated in ISMRD’s first Walk-Run Fundraiser\, which raised more money than any single event to that time! \nNone of this would have been possible without the untiring efforts of Terri Klein\, Jenny Noble and their crew of volunteers. Above all\, it could not have occurred without the support of corporate and individual donors\, whose faith in ISMRD resulted in the overwhelming success we enjoyed! \n \nISMRD gratefully acknowledges the following organizations that sponsored much of our walk run and conference costs in April 2005\, and have helped us make a difference for families affected by Glycoprotein Storage Diseases: \nThe National MPS Society | Colorbok | Aeschliman Equipment | Avita Artesian Water | Home Inspection Professionals | MPS Australia | Insurance One Agency | All Sewn Up! | FM Global | Adair Printing | Sky Promotions | Genzyme | Care Bags Foundation | John Adams Mortgage | Webers Restaurant & Hotel |Diad Design | Cathy & Harry Johnson\, Caterers \nThank you for making a difference to our families! \n“Out of all the conferences Kevin and I have attended this was by far the most informative and useful. Speakers were outstanding and the chance to talk with each one individually about concerns and needs was incredible!” \n“We always came away from conferences being glad we went because we learned something\, yet always felt our needs were not being met. Not this time\, though. The doctors were all great! \n“This weekend was a wonderful memory for all of us to cherish and hope to achieve again someday!” \n“Congratulations on the fantastic result!! This is simply amazing and shows what can be accomplished by dedicated people committed to a cause.” \n“I came with little knowledge and left with alot\, mostly new friends. The sharing of information and being part of a big family has been fantastic!”
URL:https://www.ismrd.org/event/crossing-oceans-for-a-cure-2005/
LOCATION:Ann Arbor\, MI\, United States
ATTACH;FMTTYPE=image/jpeg:https://www.ismrd.org/wp-content/uploads/2024/06/crossing-oceans-4-cure-th.jpg
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