Being able to attend the conference was an amazing experience for us. Meeting other families with children with the same/similar condition was just invaluable.
Listening to individuals stories from family members and sufferers of these diseases was very emotional but also very close to home.
It is amazing to see what progress is being made in the search for a cure and I am in total ore of these doctors – scientists whom are making it there lives work.
This also helped me to come home with a more positive outlook toward the future just knowing that we are not alone and break throughs are being made.
For that I can not thank you enough for bringing the conference to Europe so we could attend.