It is with grateful thanks to the Stark-King family, as well as to Jenny Smith’s family before them, that we acknowledge their courage in presenting the day-to-day progress of their son’s Bone Marrow Transplant. Alpha Mannosidosis and the other Oligosaccharide Diseases, are so rare that such documentation provides an important knowledge base for other families and their caregivers. We hope the journals of both the Stark-King and Smith families will have such a benefit.
For further information about Bone Marrow Transplants, please see our special section about these procedures.
The viewpoints expressed in Robert’s Road to Recovery do not necessarily reflect the views or opinions of the Board of Directors of the International Society for Mannosidosis & Related Diseases, Inc. It is important to remember that you should always consult with your child’s physician before making decisions regarding the health of that child. If you have questions or concerns please contact us.