Robert’s Road to Recovery


 Robert, our youngest son, was diagnosed with Alpha Mannosidosis in February 2001 at the age of four. This was a long time in coming. I want to cover some history that may be useful to other parents. Robert is now recovering from a bone marrow transplant that was performed July 19, 2001, and that background may be valuable, as well. Please see my personal diary of transplants 1 and 2 to participate in our journey.

To read this prologue select from the menu below:

Back to the Beginning | Suspicions & Diagnosis | An action plan & donor search | Robert’s surgeries

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