Robert's Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen's Diary: July 9, 2001 Personal Update BMT-10 (Bone Marrow Transplant minus ten as we say in the medical world) Robert now has his central line....
Journal Collections
Kathleen’s Journal Entries
Robert’s Road to Recovery Journal July 10 2001
Robert's Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen's Diary: July 10-12 2001 July 10, 2001 Personal update for Robert BMT-9 Last night was a little rough for Mark and Robert. Robert had to take a...
Robert’s Road to Recovery Journal July 14 2001
Robert's Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen's Diary: July 14 2001 Robert's BMT-5 Personal Information Robert's medications changed today. He started a new medication today, Fludarabin. This...
Robert’s Road to Recovery Journal July 15 2001
Robert's Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen's Diary: July 15 2001 Robert BMT-3 Robert is now doing well. His fever is between 103 and 104(40.4), his 02 has been dropping and they are...
Robert’s Road to Recovery Journal July 16 2001
Robert's Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen's Diary: July 16-17 2001 July 16, 2001 Robert BMT-3 Robert is not doing well. His fever is between 103 and 104(40.4), his 02 has been dropping...
Robert’s Road to Recovery Journal July 18 2001
Robert's Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen's Diary: July 18 2001 Robert BMT-1 Robert continues to do much better with the R-ATG running at half the dose for twice as long. He does seem to...
Robert’s Road to Recovery Journal July 19 2001
Robert's Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen's Diary: July 19 2001 Robert BMT Day Robert's new birthday!!!! Today was the day! It was a little bumpy along the way. The doctors decided it...
Robert’s Road to Recovery Journal July 23 2001
Robert's Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen's Diary: July 23 2001 Robert's BMT + 4 Robert seems to be doing well. His lungs are still sounding crackly and he has been on O2 for about a week...
Robert’s Road to Recovery Journal July 27 2001
Robert's Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen's Diary: July 27 2001 Robert BMT + 7 Robert had a platelet transfusion again today. Yesterday's transfusion got a little confused and ended up...