Journal Collections

Kathleen’s Journal Entries

Robert’s Road to Recovery Journal July 9 2001

Robert's Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen's Diary: July 9, 2001 Personal Update BMT-10 (Bone Marrow Transplant minus ten as we say in the medical world) Robert now has his central line....

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Robert’s Road to Recovery Journal July 10 2001

Robert's Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen's Diary: July 10-12 2001 July 10, 2001 Personal update for Robert BMT-9 Last night was a little rough for Mark and Robert. Robert had to take a...

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Robert’s Road to Recovery Journal July 14 2001

Robert's Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen's Diary: July 14 2001 Robert's BMT-5 Personal Information Robert's medications changed today. He started a new medication today, Fludarabin. This...

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Robert’s Road to Recovery Journal July 15 2001

Robert's Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen's Diary: July 15 2001 Robert BMT-3 Robert is now doing well. His fever is between 103 and 104(40.4), his 02 has been dropping and they are...

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Robert’s Road to Recovery Journal July 16 2001

Robert's Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen's Diary: July 16-17 2001 July 16, 2001 Robert BMT-3 Robert is not doing well. His fever is between 103 and 104(40.4), his 02 has been dropping...

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Robert’s Road to Recovery Journal July 18 2001

Robert's Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen's Diary: July 18 2001 Robert BMT-1 Robert continues to do much better with the R-ATG running at half the dose for twice as long. He does seem to...

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Robert’s Road to Recovery Journal July 19 2001

Robert's Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen's Diary: July 19 2001 Robert BMT Day Robert's new birthday!!!! Today was the day! It was a little bumpy along the way. The doctors decided it...

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Robert’s Road to Recovery Journal July 23 2001

Robert's Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen's Diary: July 23 2001 Robert's BMT + 4 Robert seems to be doing well. His lungs are still sounding crackly and he has been on O2 for about a week...

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Robert’s Road to Recovery Journal July 27 2001

Robert's Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen's Diary: July 27 2001 Robert BMT + 7 Robert had a platelet transfusion again today. Yesterday's transfusion got a little confused and ended up...

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