Events

This event was held in Washington 1–4 April 2004.

Crossing Oceans for A Cure Family Workshop & Fundraiser was one of the largest events undertaken by ISMRD. Families that had never been exposed to others whose children had the same very rare diagnosis were afforded the opportunity to meet. These same families were tutored about Glycoprotein Storage Diseases, Mucolipidosis and Mannosidosis by eminent professionals […]

The second International Conference for Glycoprotein Storage Diseases was held in Michigan, USA July 26–27 2007. The conference was sponsored by the National Institute of Neurological Disorders and Stroke, The Office of Rare Diseases and the National Institutes of Health. ISMRD is very grateful to the following organizations who also sponsored the conference: Amicus Therapeutics, […]