Events

This event was held in Washington 1–4 April 2004.

Crossing Oceans for A Cure Family Workshop & Fundraiser was one of the largest events undertaken by ISMRD. Families that had never been exposed to others whose children had the same very rare diagnosis were afforded the opportunity to meet. These same families were tutored about Glycoprotein Storage Diseases, Mucolipidosis and Mannosidosis by eminent professionals […]

The second International Conference for Glycoprotein Storage Diseases was held in Michigan, USA July 26–27 2007. The conference was sponsored by the National Institute of Neurological Disorders and Stroke, The Office of Rare Diseases and the National Institutes of Health. ISMRD is very grateful to the following organizations who also sponsored the conference: Amicus Therapeutics, […]

ISMRD’s penguin family again migrated from around the world to attend the 3rd International conference for Glycoprotein Storage Diseases held in Charleston, South Carolina USA. The meeting was jointly hosted by ISMRD and the Greenwood Genetic Center (GGC). Natural History clinics for 30 patients were also held at GGC’s Charleston office on July 27th and […]