Family Contact Form

ISMRD – International Society for Mannosidosis & Related Diseases

Please fill in the form below. Membership is free.

Thank you for taking the time to provide these details. We invite you to join our Private ISMRD Facebook Group.

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First Parent's Name

First

Last

Additional Parent's Name (optional)

First

Last

Name of Affected Family Member

First

Last

Any additional affected family members please list names here (optional)

If you have additional affected family members, we will contact you to gather the additional information below.

Names and ages of siblings (optional)

Address

Address Line 1

Address Line 2

City

State

Zip Code

Phone Number

Affected Person's Date of Birth

Date of Diagnosis

applicable) Names (optional)

Date Passed Away (if applicable)

Cause of Death

Date of Bone Marrow Transplant (if applicable)

Date of Cord Blood Transplant (if applicable)

Date of Pamidronate (if applicable)

Comment or Message