Kathleen's Journal, Robert's Road to Recovery
Robert’s Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen’s Diary: April 20, 2002 BMT + 18 Today was another difficult day. Robert continued to have evidence of liver complications (high...
Kathleen's Journal, Robert's Road to Recovery
Robert’s Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen’s Diary: April 21, 2002 BMT + 19 The situation for Robert is very serious. The doctors told Mark that Robert’s VOD is moderate...
Kathleen's Journal, Robert's Road to Recovery
Robert’s Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen’s Diary: April 22, 2002 BMT + 20 Robert was more uncomfortable today, and his rash seemed worse. He also had a slight fever in the...
Kathleen's Journal, Robert's Road to Recovery
Robert’s Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen’s Diary: April 23, 2002 BMT + 21 The nights are the worst for Robert. He has been having low grade fevers, high respiratory rates,...
Kathleen's Journal, Robert's Road to Recovery
Robert’s Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen’s Diary: April 24, 2002 BMT + 22 Robert’s liver/kidney function numbers trended down and one up. His GGT went from 993 to 696;...
