ISMRD
  • Glycoprotein Diseases
    • Alpha-Mannosidosis
    • Aspartylglucosaminuria
    • Beta-Mannosidosis
    • Fucosidosis
    • Galactosialidosis
    • Mucolipidosis II alpha/beta
    • Mucolipidosis III Gamma
    • Schindler Disease
    • Sialidosis
  • About
    • Board of Directors
    • Professional Advisory Board
    • Annual Reports
  • Resources
    • U.S. Doctor Database
    • Family Stories
    • Useful Links
    • Video Library
  • News and Events
    • Research and Grants
    • Events
    • Newsletters
  • Contact
  • Donate
Select Page

Robert’s Road to Recovery Journal April 25 2002

Kathleen's Journal, Robert's Road to Recovery

Robert’s Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen’s Diary: April 25, 2002 BMT + 22 Robert’s numbers looked good again today. Robert’s Bilirubin was slightly down and so...

Robert’s Road to Recovery Journal April 26 2002

Kathleen's Journal, Robert's Road to Recovery

Robert’s Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen’s Diary: April 26, 2002 BMT + 23 Robert had fevers most of the day. This was unusual; most of his fevers have been at night. He felt...

Robert’s Road to Recovery Journal April 27 2002

Kathleen's Journal, Robert's Road to Recovery

Robert’s Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen’s Diary: April 27, 2002 BMT + 25 Robert had fevers most of the day again. He felt a little better during the day. The bilirubin was...

Robert’s Road to Recovery Journal April 29 2002

Kathleen's Journal, Robert's Road to Recovery

Robert’s Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen’s Diary: April 29, 2002 BMT + 27 Robert has kept us very busy in the last 24 hours. He has had severe diarrhea for the last few days,...

Robert’s Road to Recovery Journal May 1 2002

Kathleen's Journal, Robert's Road to Recovery

Robert’s Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen’s Diary: May 1, 2002 BMT + 29 Robert’s numbers looked good again today, except that his bilirubin was up to 16.3, a jump from 12.2....
« Older Entries
Next Entries »

Family Stories

  • Family Stories Page

Family Journals of Treatment & Recovery

  • Alexander's Hope
  • Damien and Jesse-Rose
  • Daniel and Alexander's Journey to Diagnosis
  • Ivan the Great
  • Jenny's Journal
  • Robert's Road to Recovery
  • Trajano Cerna's Story

Stories Organized by Disease

  • Alpha-Mannosidosis 
  • Aspartylglucosaminuria 
  • Beta-Mannosidosis
  • Fucosidosis 
  • Galactosialidosis 
  • Mucolipidosis II alpha/beta 
  • Mucolipidosis III alpha/beta 
  • Sialidosis

Search

Explore ISMRD

  • Glycoprotein Diseases
  • About
  • Resources
  • News and Events
  • Contact
  • Donate

Contact Us

Email: info@ismrd.org 

Mail: P.O. Box 683, Turnersville, NJ 08012, USA

Facebook: Connect with us online

Support & Connect

Make a Donation
Get our Newsletter

© 2025 ISMRD, a 501 (c)(3) not-for-profit organization, FEIN 52-2164838; all rights reserved| Privacy Policy | Disclaimer & Accessibility