Kathleen's Journal, Robert's Road to Recovery
Robert’s Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen’s Diary: May 2, 2002 BMT + 30 Robert is comfortable and stable in the Pediatric Intensive Care Unit (PICU) today. He had a very...
Kathleen's Journal, Robert's Road to Recovery
Robert’s Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen’s Diary: May 4, 2002 BMT + 32 Robert has been fairly comfortable in PICU and he seems to be breathing easier on the ventilator (not...
Kathleen's Journal, Robert's Road to Recovery
Robert’s Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen’s Diary: May 6, 2002 BMT + 34 Robert is receiving a lot of sedatives to keep him quiet. When he wakes up, the ventilator tube upsets...
Kathleen's Journal, Robert's Road to Recovery
Robert’s Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen’s Diary: May 7, 2002 BMT + 35 Robert is still on the ventilator; but his lung function is improving, and he may be taken off the...
Kathleen's Journal, Robert's Road to Recovery
Robert’s Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen’s Diary: May 9, 2002 BMT + 37 Robert is still on the ventilator; but he is being tested today to take him off the ventilator. He has...
