Kathleen's Journal, Robert's Road to Recovery
Robert’s Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen’s Diary: May 10, 2002 BMT + 38 Robert is still on the ventilator. He passed the lung test to be extubated, but since he had unusually...
Kathleen's Journal, Robert's Road to Recovery
Robert’s Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen’s Diary: May 12, 2002 BMT + 40 Robert is still on the ventilator. He passed the lung test to be extubated, but since he had unusually...
Kathleen's Journal, Robert's Road to Recovery
Robert’s Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen’s Diary: May 14, 2002 BMT + 42 Kathleen and I were very happy to get some smiles and giggles from Robert yesterday. He also told us...
Kathleen's Journal, Robert's Road to Recovery
Robert’s Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen’s Diary: May 16, 2002 BMT + 44 For the tetchy group, you are going to have to endure my update because Mark did not write one today....
Kathleen's Journal, Robert's Road to Recovery
Robert’s Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen’s Diary: May 18, 2002 BMT + 46 My new motto is, “What a difference a day makes”. Robert had a very tough night last night. They...
