Kathleen's Journal, Robert's Road to Recovery
Robert’s Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen’s Diary: June 10, 2002 BMT + 69 Tomorrow will mark 10 weeks at UCSF for Robert (this time). He seems ready to go home. Today he tried...
Kathleen's Journal, Robert's Road to Recovery
Robert’s Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen’s Diary: June 11, 2002 BMT + 70 Robert is still in good spirits, but not eating enough. The bone marrow team has decided to go ahead...
Kathleen's Journal, Robert's Road to Recovery
Robert’s Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen’s Diary: June 12, 2002 BMT + 71 Robert had his biopsy at about 10:00 a.m. this morning, just before I received a copy of his counts....
Kathleen's Journal, Robert's Road to Recovery
Robert’s Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen’s Diary: June 13, 2002 BMT + 72 We haven’t gotten results on the biopsy yet but Dr. Menzer this morning told me he was switching...
Kathleen's Journal, Robert's Road to Recovery
Robert’s Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen’s Diary: June 14, 2002 BMT + 73 Kathleen says feedback was positive when I took credit for Robert’s improvement. She tells me the...
