Kathleen's Journal, Robert's Road to Recovery
Robert’s Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen’s Diary: August 12, 2002 BMT + 134 It sure is nice to have your own cheering section. It makes life just wonderful. Robert’s...
Kathleen's Journal, Robert's Road to Recovery
Robert’s Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen’s Diary: September 11, 2002 BMT + 164 Dear Friends and Family, I know I am very remiss in my updates but Robert is again on his way...
Kathleen's Journal, Robert's Road to Recovery
Robert’s Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen’s Diary: September 14, 2002 BMT + 167 Every time I come up to UCSF for Robert, I figure this should be the last night in the...
Kathleen's Journal, Robert's Road to Recovery
Robert’s Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen’s Diary: September 16, 2002 BMT + 169 Robert did get to come home today. He has his feeding tube for twelve hours a day, an...
Kathleen's Journal, Robert's Road to Recovery
Robert’s Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen’s Diary: September 30, 2002 BMT + 183 As many of you are aware, Robert has been in and out of the hospital for the last three weeks,...
