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Robert’s Road to Recovery Journal July 18 2001

Kathleen's Journal, Robert's Road to Recovery

Robert’s Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen’s Diary: July 18 2001 Robert BMT-1 Robert continues to do much better with the R-ATG running at half the dose for twice as long. He...

Robert’s Road to Recovery Journal July 19 2001

Kathleen's Journal, Robert's Road to Recovery

Robert’s Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen’s Diary: July 19 2001 Robert BMT Day Robert’s new birthday!!!! Today was the day! It was a little bumpy along the way. The...

Robert’s Road to Recovery Journal July 23 2001

Kathleen's Journal, Robert's Road to Recovery

Robert’s Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen’s Diary: July 23 2001 Robert’s BMT + 4 Robert seems to be doing well. His lungs are still sounding crackly and he has been on...

Robert’s Road to Recovery Journal July 27 2001

Kathleen's Journal, Robert's Road to Recovery

Robert’s Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen’s Diary: July 27 2001 Robert BMT + 7 Robert had a platelet transfusion again today. Yesterday’s transfusion got a little...

Robert’s Road to Recovery Journal August 6 2001

Kathleen's Journal, Robert's Road to Recovery

Robert’s Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen’s Diary: August 6 2001 Robert BMT + 18 Today was a celebration day. Robert’s white blood cell count went from .1 to .2. It is...
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