ISMRD
  • Glycoprotein Diseases
    • Alpha-Mannosidosis
    • Aspartylglucosaminuria
    • Beta-Mannosidosis
    • Fucosidosis
    • Galactosialidosis
    • Mucolipidosis II alpha/beta
    • Mucolipidosis III Gamma
    • Schindler Disease
    • Sialidosis
  • About
    • Board of Directors
    • Professional Advisory Board
    • Annual Reports
  • Resources
    • U.S. Doctor Database
    • Family Stories
    • Useful Links
    • Video Library
  • News and Events
    • Research and Grants
    • Events
    • Newsletters
  • Contact
  • Donate
Select Page

Robert’s Road to Recovery Journal August 24 2001

Kathleen's Journal, Robert's Road to Recovery

Robert’s Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen’s Diary: August 24, 2001 Robert’s Update BMT + 36 Robert started the day with his bone marrow biopsy. I was concerned about...

Robert’s Road to Recovery Journal August 25 2001

Kathleen's Journal, Robert's Road to Recovery

Robert’s Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen’s Diary: August 25, 2001 Robert’s Update BMT + 37 Robert is feeling fine, and has no fever or other symptoms of illness....

Robert’s Road to Recovery Journal August 26 2001

Kathleen's Journal, Robert's Road to Recovery

Robert’s Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen’s Diary: August 26, 2001 Robert’s Update BMT + 38 Things looked pretty bleak yesterday morning. Robert’s WBC was .2, RBC...

Robert’s Road to Recovery Journal August 27 2001

Kathleen's Journal, Robert's Road to Recovery

Robert’s Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen’s Diary: August 27, 2001 Robert’s Update BMT + 39 Robert’s counts have risen again and he has not had a fever in five...

Robert’s Road to Recovery Journal August 30 2001

Kathleen's Journal, Robert's Road to Recovery

Robert’s Road to Recovery Journal Presented by the International Society for Mannosidosis & Related Diseases. Kathleen’s Diary: August 30, 2001 Robert’s Update BMT + 42 Today has been a day of ups and downs. On the positive side, our neighbor Jo...
« Older Entries
Next Entries »

Family Stories

  • Family Stories Page

Family Journals of Treatment & Recovery

  • Alexander's Hope
  • Damien and Jesse-Rose
  • Daniel and Alexander's Journey to Diagnosis
  • Ivan the Great
  • Jenny's Journal
  • Robert's Road to Recovery
  • Trajano Cerna's Story

Stories Organized by Disease

  • Alpha-Mannosidosis 
  • Aspartylglucosaminuria 
  • Beta-Mannosidosis
  • Fucosidosis 
  • Galactosialidosis 
  • Mucolipidosis II alpha/beta 
  • Mucolipidosis III alpha/beta 
  • Sialidosis

Search

Explore ISMRD

  • Glycoprotein Diseases
  • About
  • Resources
  • News and Events
  • Contact
  • Donate

Contact Us

Email: info@ismrd.org 

Mail: P.O. Box 683, Turnersville, NJ 08012, USA

Facebook: Connect with us online

Support & Connect

Make a Donation
Get our Newsletter

© 2025 ISMRD, a 501 (c)(3) not-for-profit organization, FEIN 52-2164838; all rights reserved| Privacy Policy | Disclaimer & Accessibility