Send us your details Contact Details ISMRD has an extensive mailing list so that we can keep families up to date via our newsletter, our fundraising projects and latest research for our diseases. We would love to have you join the mailing list for updates. Parents’ names Email address Phone number Postal address Please add me to the mailing listPlease don't add me to the mailing list Child’s information ISMRD maintains a database about families with Glycoprotein Storage Disease. We would be grateful if you could enter the following basic information about your child for our database Child’s full name Type of disease Date of birth Date of diagnosis Are you undergoing or have you undergone a bone marrow transplant? YesNo Are you using or have you used Pamidronte? YesNo
