Contact Details

ISMRD has an extensive mailing list so that we can keep families up to date via our newsletter, our fundraising projects and latest research for our diseases. We would love to have you join the mailing list for updates.

Child’s information

ISMRD maintains a database about families with Glycoprotein Storage Disease. We would be grateful if you could enter the following basic information about your child for our database


Are you undergoing or have you undergone a bone marrow transplant?

Are you using or have you used Pamidronte?