Life Time Awards

Family Conference

During the Gala Dinner ISMRD presented two Life Time Achievement Awards. These awards are given in recognition of the dedication we see in those that we regard as special because they have given their life and talents in trying to seek a cure for these rare and debilitating diseases.

ISMRD was very proud to present two awards this year with the first one going to Paul Murphy for the work he did in the early days of the development of ISMRD.

The second award went to Mark Haskins who worked with the animal models of Lysosomal Storage Disease at the Philadelphia research centre. Mark is now retired but we are sure he will still be involved in someway

ISMRD also presented a Patient Advocate Award to John Forman who has spent most of his working life advocating for families affected by these diseases.  John was unable to join us in Rome but joined us by Video.