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- Giovanna, Davide Bricca and Nocola Cocconi talk about attending the meeting and meeting other affected patients, Dr d’Azzo and Camillo Toro who are working on saialidosis
- Louise Ardnall
- Westerink Family and Ciska Posdijk talk about their experience of attending an ISMRD conference for the very first time
- Shirley Jamil – Our journey to Rome to meet families affected by mucolipdisis and other rare diseases
- Daniel Peach [pdf] writes about his experience of attending the conference in Rome. This was Dan’s first experience of ISMRD and has now become a Board member